A woman has spoken out about her health condition after undergoing 50 surgical procedures on her giant leg.
28-year-old Arianna Faro from Massachusetts, US, was born with an uncommon congenital disorder also known as Klippel-Trenaunay Syndrome which causes one of her legs to grow uncontrollably and result in painful lesions and life-threatening infections.
Watch 28-Year-Old Woman Speak Out About Her Giant Leg Caused By Rare Condition!
As Ms. Faro admitted, she had spent the majority of her teen years in the bed due to her condition. In addition, she has undergone 50 surgeries in an attempt to make living with the rare disorder easier.
“I have been extremely impacted by this condition, I was spending most of my time in bed unable to walk. I went through a major period of depression and anxiety,” the 28-year-old said in an interview with Barcroft TV.
“From the time I was two months old, I had septic shock, which is a side effect of the condition. Throughout my childhood, I was fine and then when I was 14, the condition started progressing again.
“And I would be in hospital 15 to 20 times a year with cellulitis or sepsis. It seemed at the time like things were hopeless.
“I was just in a repeating pattern of keep going: get hospitalized for a month, come home maybe a week or two, get hospitalized again for like a month. It was very difficult.”
As the brave woman added, she’s always felt different from the people around her.
“I definitely felt different, especially in high school, for not being able to do a lot of the things that the other kids were doing. And I was also extremely shy around boys,” she expressed.
While living with such a condition is far from easy, Arianna continues to stay positive and look forward to her future.
“It’s just knowing that you can either let a condition define you, destroy you or strengthen you. And I choose to let it strengthen me,” she added.
Fortunately for the young woman, the Boston’s Children’s Hospital agreed to let Arianna become the first American to try out a new, revolutionary drug to shrink her massive leg. Following three months after first applying the new medication, Arianna is feeling much better than ever since she was 14 years old.
“Today is my first-day morphine free. I was on it for about a year,” Arianna explained, adding that the pioneering drug helped her break free from morphine by eliminating the pain.
“It feels really good to not have to be dependent on a pill. In the past 14 years, I’ve had excruciating pain. So now that I don’t have it feels incredible, it’s everything I could have dreamed of.
“Living with Klippel Trenaunay Syndrome has been extremely hard and extremely excruciating, but also one of the most rewarding experiences of my life. It taught me to have empathy and compassion for others who are going through struggles that I don’t even know about.
“It’s not always easy. You are going to have hard days but it’s about making the good moments count for more than the bad ones. When you get a good moment, treasure it and when you get a hard moment know it won’t be there forever, eventually you will get to a good moment again.”
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