Thirty-two-year-old Amber Guzman suffers from a rare and untreatable disease known as Muscular Dystrophy. In this disease, the muscles of the affected person keep deteriorating with age.
Due to her extremely weak muscles, Amber refers to herself as a ‘living doll.’ She cannot walk very long on her own and always needs someone to move her around.
With her wheelchair and shiny outfits, Amber is very popular among her thousands of followers.
Watch her life story in the video below.
Video credit: Rumble
Speaking to Barcroft TV, she said: “After I hit puberty, my muscles were just depleting and going down. It’s an illness that kills off your muscles and makes it hard for you to rebuild your muscles.
“I was diagnosed in 2012, but I started noticing I was having more problems walking after the age of 15.”
Remaining alive and doing even the simplest tasks became extremely difficult for Amber after Muscular Dystrophy started showing its symbols.
Amber said: “When I was first diagnosed, I was barely struggling. I was still walking but I was struggling to get upstairs on my own.
“I struggled to pick up my tools for cosplay or even just doing my makeup. I had to keep my hands up for so long that became tiring.”
It was when Amber started investing her time and energy in cosplay. According to her, it is this very hobby that has kept her alive so far.
“Year after year I would lose like another ability and slowly lose something else,” she said.
“I needed help to get off of the toilet, into the shower, into the bed. That’s why cosplay means so much to me because it saved me from having to think about that a lot.
“That’s why I appreciate cosplay because it occupies my mind from thinking about the negative.”
Amber is now the show stopper in the cosplay competitions for specially challenged people. Fans like her a lot and most would even struggle to get a selfie with her.
“People always come up to me at conventions and say I can’t believe you did this huge costume with your wheelchair,” Amber said.
“I love incorporating my wheelchair into my cosplay.
“You just don’t see it so it’s rare. It’s rare to see a well-known cosplayer with disabilities. You tend not to think of yourself as being that special.
“I never thought I would have that effect on anybody to be called inspiring.”
Amber is living with her teenage love Martin. They met when Amber was 17 and had just moved to long beach California. Martin already lived there.
Martin also spoke to Barcroft TV, saying: “I use her as motivation.
“I’m so grateful to have her and both of us learned so much from this illness. We’re very thankful for just being where we are, we could be in a way worse situation.”
Amber aims to change the perception of everyone about people in a wheelchair. Her goal is to inspire other people with disabilities to be a constructive part of society.
She said: “Having a disability doesn’t mean your life is over.
“It doesn’t mean that it’s the end or you have to stop your dreams if your disabled or in a wheelchair. You could always still get to the end goal no matter what you’re doing.
“Never give up on your dreams while being disabled.”
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