An Adorable eight-year-old kid has a rare form of dwarfism that is so rare that there are only 28 people like him in the world.
Landen Johnson who lives in Lincolnton in North Carolina has a form of the disease known as ‘primordial dwarfism.’ There are less than hundred such cases in the world.
Landen’s disease is identified Ligase 4 deficiency that directly impacts his immune system. Landen is only 3 feet tall, and if doctors are to be believed, he won’t grow an inch to 4 feet. But this doesn’t stop his spirit which is courageous.
Landen had a bone transplant five weeks ago and had to go to the hospital thrice a week. But he can barely manage to go outside. His daily intake is stuffed with medicines. His energy levels have been deteriorating, but his spirit is still entrenched.
Luke who is Landen’s father said that he admires his son’s strength for going through such hard times early on in his life. His son has taught him a lot about following the lord and being strong.
Landen weighs just 24 pounds and his lighter as compared to his 3-year-old sister. Landen wears shirts that are sized 3T.
Landen was born underweight and looked smaller than other babies. According to his mother, Landen weight just 5 pounds and 6 ounces at the time of his birth. But this wasn’t a great difference to cause worry.
But Landen never really gained weight. After constant checkups, they couldn’t understand what was wrong with their little boy. Until one day when they discovered about his rare disease.
When they tried feeding Landon with extra calories, his weight dropped instead of increasing. His lack of growth had baffled the doctors.
The family found out about his rare disease in 2013 and realized that he had a low number of platelets in his body. Due to this, he was hospitalized a couple of times as his immune system was quite weak.
Bone marrow transplant was the only way for Landon to survive and live a healthy life. They found a donor and completed the transplantation.
Before the transplant, Landen underwent chemotherapy to tear down his present immune system. The transfusion would build a new immune system for Landen.
Luckily, the transplant was a success and Landon survived.
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