9-year-old Taegan Appleby from Aylesham Kent used to endure up to 300 seizures a day.
Doctors even said that it had been one of the worst cases they’ve ever seen.
She was born with a rare chromosome disorder isodicentric chromosome 15 syndrome. When Taegan was four, she was diagnosed with severe Lennox Gastaut Syndrome epilepsy.
The child’s condition became so bad she couldn’t eat and had to be placed in a medically-induced coma after suffering from five seizures over the course of 8 days.
Lennox Gastaut Syndrome makes four percent of child epilepsy cases in the US, according to statistics. It can cause ‘drop attacks’, ‘atypical absence seizures’ and ‘tonic seizures.’
Emma Appleby, Taegan’s mom, said she had to call an ambulance at least once a week. “It just got really bad, very quickly. She seizures every day and she can seizure up to 300 times a day.
“She’s lost all of her skills – she didn’t have many because she’s been delayed anyway.
“Before she had epilepsy she could run around in the garden and feed herself but now she is completely dependent on someone to look after her.
“She’s losing the ability to chew and swallow at the moment, that’s the latest thing to be affected. She’s very poorly.”
Taegan was then given Epidiolex, which has cannabis compound cannabidiol but not THC.
It was enough to stop the girl’s seizures during the day.
“If you’ve got a child who seizures 300 times a day, I’d be happy if it was just a 50 per cent decrease,” Ms Appleby expressed.
“It could be a whole new life for her, she could be like a whole new child,” she added.
The new law allows specialist doctors to prescribe medicines derived from cannabis but despite being legalized, cannabis oil is still medically unlicensed.
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