Watch Family ‘Made Of Glass’ Who Suffer From Brittle Bones!
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A family of three is living with a rare condition that causes the bones to be extremely brittle, meaning that anything such as a sudden move or even a sneeze can cause them to shatter.
Parents Chris and Lisa and their daughter Anicee have all been living with a rare genetic disorder called Osteogenesis Imperfecta (OI). The condition causes bones to be brittle and prone to shattering, whereas the family has already broken over 600 bones in total.
“Osteogenesis Imperfecta is a brittle bone disease disorder, it’s a genetic mutation that is obviously pretty painful and that is why we are smaller than the typical person and of course we use wheelchairs to get around,” mother Lisa said in an interview with Barcroft TV.
“Our house is different. We have different cars equipped to help us. We have a service dog and we do have different challenges in our lives but we are also just a lot like a typical family as well.”
As the daughter, 15-year-old Anicee, added, it is not uncommon for her to break bones. “I usually break two bones per month. I have broken over 200 bones so far,” she claimed.
“It’s really easy to break a bone. You could just get in and out of your chair and you can break a bone. You can cough and you can break a bone. You can sneeze and you can break a bone.
“OI affects me on daily basis because I break a lot so that’s not normal and so I can’t really do a lot of things; I can’t play sports as much but I am happy as I am.”
To express her feelings, the teen girl started painting and her works became famous around the globe.
“I like to paint a lot. I can just express my feelings through my art. I just feel really happy and peaceful,” she added.
“Anicee was an ambassador to a children’s hospital and she painted a painting for them to auction off at their gala and it went for 50,000 dollars that night.
“And then the auctioneer said is there anyone that will match that for her to do a second painting and someone raised their hand. It makes me cry.”
As the girl added in an interview, all she wants is “to be treated as a normal person and not be judged because of who I am.”
As for the parents, they want everyone to understand that people with OI are capable of accomplishing all kinds to things just like everyone else.
“We were very proud of what we kind of accomplished and were able to do. We both have engineering degrees and Chris worked at NASA and OI shouldn’t stop you,” Lisa said.
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