Cameron Alderman, from Bradley Stoke near Bristol, was born with a very rare genetic disorder Norrie disease that causes blindness from birth.
But his 30-year-old mother Carla Golledge didn’t realize it until he was six-weeks-old.
Carla said: “His eyes looked different and I noticed a little yellow dot on his pupil when he opened his eyes.”
Cameron was then diagnosed with Norrie disease a few months later. The mother was left devastated when her son started going deaf when he was just three.
The mother said they had accepted his blindness but it left her heartbroken when he started going deaf.
She said: “He heavily relied on his hearing, so when he started losing it, it was absolutely devastating for us.”
“It frightens me to think he is at risk of being isolated from the world.”
Cameron was also diagnosed with autism and faced learning difficulties and a lack of mobility.
Despite this, Cameron, who is now seven-year-old, is very bubbly, energetic and cheeky. He loves music and dancing.
She said he had an Education, Health and Care Plan (EHCP) when he started at a specialist school when he was two.
However, after being diagnosed with autism, he doesn’t fit into one box and it has become difficult to get support for him.
When Carla asked for an annual review two years ago, it was turned down by the local authority. Since then, she has been fighting to have Cameron’s plan reassessed.
Carla says Cameron is completely non-verbal and he should be getting regular speech and language help at school.
She says he should also be receiving mobility training from a rehabilitation officer and this is the reason she wants the Government to reinstate the £434m of funding it has cut.
Carla says she struggles to cope with his needs as he is getting older and stronger.
The local authority has now agreed to start the reassessment process.
Cameron is likely to undergo a cochlear implant operation to help with his hearing loss and Carla is happy it will make a huge difference in his life.
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